Objectives
To achieve its goal as guided by
the vision-mission of the association,
that is to provide the optimal for the
thalassemic child in order to help him
grow as normal as possible and enter
the mainstream of normal life.
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Vision
To detect, diagnose, and if possible,
reduce the incidence of Thalassemia
in the Philippines.
To improve the quality life (pharmacologic
and non-pharmacologic means) of Thalassemic patients.
To educate the population regarding
Thalassemia and its impact to the society.
To affiliate BA-THA with international
Thalassemia societies that can help
our poor Thalassemic patients.
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Mission
To create a support group (parents,
friends, patients who have/are thalassemics)
that will assist the family of the
Thalassemic child cope up with the
emotional, psychological, spiritual
and financial demands of having a
Thalassemic child.
To increase public awareness and involvement
To educate the lay and medical personnel
regarding Thalassemia
To improve the medical care and treatment
thru updates and researchers.
To make treatment and medications
affordable and accessible to all
thalasemic patients.
To aid the Thalassemic adults enter
the normal mainstream of society and
live a normal, happy, productive life.
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Facts
Thalassemia is fatal genetic disease that affects
millions of people around the world. It strikes
people who live in a tropical belt reaching across
Eurasia, from Mediterranean Greeks and Italians,
to people from South Asia, such as India and reaches
into Southeast Asia and China. It is estimated that
180 million people carry the thalessemia gene.
If both parents carry the disease, there is a one
in four chance in a pregnancy that the child will
inherit the fatal form of the disorder.
Children affected with thalassemia cannot make
enough hemoglobin, the substance that carries
oxygen in the blood.
For centuries, most children born with the disease
did not survive past their 10th birthday.
The most severe form, alpha thalassemia mostly
strikes people from Southeast Asia, China and
the Philippines and often results in the death
of the newborn child. Others have milder forms
of the disease.
Children who have the disease appear healthy at
first but by one or two lose their appetite and
energy, became pale and eventually develop jaundice,
or a yellowing of the skin.
If the disease is not treated, the heart, spleen
and liver become enlarged. Bones can become thin.
The children can die from heart failure or infection.
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